Melhorias nas articulações

 

Uma nova abordagem para a saúde das articulações

Sangramentos (hemartrose) e o consequente dano às articulações (artropatia) são as complicações mais comuns da hemofilia1,2. Até a idade adulta, 24% das pessoas com hemofilia grave terão desenvolvido uma ou mais "articulações-alvo" que carregam um risco elevado de sangramentos recorrentes e são funcionalmente deficientes3.

Os joelhos, os cotovelos e os tornozelos contam por 80% dos sangramentos nas articulações4. Apesar dos avanços no tratamento e cuidado, os sangramentos nas articulações e a artropatia continuam sendo as complicações mais comuns da hemofilia e são preocupações importantes dos profissionais de saúde e das pessoas com hemofilia2.

Nós trabalhamos para promover a conscientização do impacto da hemofilia na funcionalidade das articulações. Queremos empoderar os pacientes e profissionais de saúde para que seja possível detectar precocemente os danos nas articulações por meio da ferramenta educacional TalkingJoints®. Esses programas de funcionalidade das articulações têm como objetivo melhorar a qualidade de vida das pessoas com hemofilia e fazem parte do nosso compromisso em mudar a hemofilia.

 

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A new approach to joint health

Bleeding into the joints (haemarthrosis) and subsequent joint damage (arthropathy) are the most common complications seen in haemophilia1,2. By adulthood, 23.5% of all people with severe haemophilia will have developed one or more ‘target joints’ that carry an increased risk of recurrent bleeds and are functionally impaired3. 

The knees, elbows and ankles account for 80% of joint bleeds4. Despite advances in treatment and care, joint bleeding and arthropathy remain among the most common complications of haemophilia and are major concerns of both healthcare professionals and people with haemophilia2.

We work on raising awareness of the impact haemophilia has on joint function. We want to empower patients and healthcare professionals to detect damage to joints early. Our joint function programmes aim to improve the quality of life for people living with haemophilia and are part of our commitment to change haemophilia.

A new approach to joint health

Bleeding into the joints (haemarthrosis) and subsequent joint damage (arthropathy) are the most common complications seen in haemophilia1,2. By adulthood, 23.5% of all people with severe haemophilia will have developed one or more ‘target joints’ that carry an increased risk of recurrent bleeds and are functionally impaired3. 

The knees, elbows and ankles account for 80% of joint bleeds4. Despite advances in treatment and care, joint bleeding and arthropathy remain among the most common complications of haemophilia and are major concerns of both healthcare professionals and people with haemophilia2.

We work on raising awareness of the impact haemophilia has on joint function. We want to empower patients and healthcare professionals to detect damage to joints early. Our joint function programmes aim to improve the quality of life for people living with haemophilia and are part of our commitment to change haemophilia.

A new approach to joint health

Bleeding into the joints (haemarthrosis) and subsequent joint damage (arthropathy) are the most common complications seen in haemophilia1,2. By adulthood, 23.5% of all people with severe haemophilia will have developed one or more ‘target joints’ that carry an increased risk of recurrent bleeds and are functionally impaired3. 

The knees, elbows and ankles account for 80% of joint bleeds4. Despite advances in treatment and care, joint bleeding and arthropathy remain among the most common complications of haemophilia and are major concerns of both healthcare professionals and people with haemophilia2.

We work on raising awareness of the impact haemophilia has on joint function. We want to empower patients and healthcare professionals to detect damage to joints early. Our joint function programmes aim to improve the quality of life for people living with haemophilia and are part of our commitment to change haemophilia.

A new approach to joint health

Bleeding into the joints (haemarthrosis) and subsequent joint damage (arthropathy) are the most common complications seen in haemophilia1,2. By adulthood, 23.5% of all people with severe haemophilia will have developed one or more ‘target joints’ that carry an increased risk of recurrent bleeds and are functionally impaired3. 

The knees, elbows and ankles account for 80% of joint bleeds4. Despite advances in treatment and care, joint bleeding and arthropathy remain among the most common complications of haemophilia and are major concerns of both healthcare professionals and people with haemophilia2.

We work on raising awareness of the impact haemophilia has on joint function. We want to empower patients and healthcare professionals to detect damage to joints early. Our joint function programmes aim to improve the quality of life for people living with haemophilia and are part of our commitment to change haemophilia.

 

 

1. Mulder K and Llinas A. The Target Joint. Haemophilia 2004; 10(4):152-6.

2. Valentino LA. Blood-induced joint disease: the pathophysiology of hemophilic arthropathy. J Thromb Heamost 2010; 8(9):1895-902.

3. Summary Report of UDC Activity National. Treatment Clinical Characteristics (Hemophilia), accessed 30 March 2015: https://www2a.cdc.gov/ncbddd/htcweb/UDC_Report/UDC_Report.asp

4. Rodriguez-Merchan EC. Aspects of current management: orthopaedic surgery in haemophilia. Haemophilia 2012; 18(1): 8–16.


1. Mulder K and Llinas A. The Target Joint. Haemophilia 2004; 10(4):152-6.
2. Valentino LA. Blood-induced joint disease: the pathophysiology of hemophilic arthropathy. J Thromb Heamost 2010; 8(9):1895-902.
3. Summary Report of UDC Activity National. Treatment Clinical Characteristics (Hemophilia), accessed 30 March 2015: https://www2a.cdc.gov/ncbddd/htcweb/UDC_Report/UDC_Report.asp
4. Rodriguez-Merchan EC. Aspects of current management: orthopaedic surgery in haemophilia. Haemophilia 2012; 18(1): 8–16.